| 沈凡，
，黄海珊
，廖宗峰
，易巧利
，毛李烨
，李玲.重症肌无力患者症状经历及心理感受的质性研究[J].神经损伤功能重建,2022,17(9):514-517 |
| 重症肌无力患者症状经历及心理感受的质性研究 |
| Symptomatic and Psychological Experience of Patients with Myasthenia Gravis：A QualitativeStudy S |
| |
| DOI： |
| 中文关键词: 重症肌无力 症状经历 心理感受 质性研究 |
| 英文关键词: myasthenia gravis symptom experience psychological feeling qualitative study |
| 基金项目:华中科技大学同济
医学院附属同济医
院中青年科研基金
项目（No. 2021HL0
52） |
|
| 摘要点击次数: 1810 |
| 全文下载次数: 1987 |
| 中文摘要: |
| 目的：全面了解重症肌无力患者症状经历及心理感受。方法：采用现象学研究法，对17例重症肌无
力患者进行半结构式访谈，运用Colaizzi 7步分析法对访谈资料进行分析。 结果：归纳出3个主题，疾病相
关症状：眼部症状、面部症状、球麻痹症状、颈部和四肢症状、呼吸症状；治疗相关症状；负性情绪经历：复发
或加重的恐惧、病耻感、睡眠障碍、心理状态改变、灾难化解释。结论：重症肌无力患者存在多种症状困扰，
承受着巨大的症状负担。 |
| 英文摘要: |
| To gain a comprehensive understanding of the symptoms and psychological feelings
experienced by patients with myasthenia gravis. Methods: Semi-structured interviews were performed by
phenomenology in 17 patients with myasthenia gravis. Data was analyzed by Colaizzi’s 7-step analysis method.
Results: Three themes were extracted, including disease-related symptoms (eye symptoms, facial symptoms,
bulbar palsy symptoms, neck and limb symptoms, and respiratory symptoms), treatment-related symptoms, and
negative emotion experience (recurrence or aggravation of fear, stigma, sleep disturbance, mental state change,
and catastrophic explanation). Conclusion: Patients with myasthenia gravis suffer a wide variety and huge
burden of symptoms. |
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